MEPAN Research Network
We are connected with experts in research and medicine who have the most experience with MEPAN and or have experience in discovering and developing treatments for patients with a rare disease. Our network includes experts in molecular and cellular biology, basic and preclinical research, and clinical and medical genetics.
Our primary aim is discover treatments for MEPAN Syndrome. We also seek ways to broaden MEPAN research beyond the affected pathway into relevant rare disease areas that are biochemically or pathologically connected.
Click here if you would like to submit a research proposal, or send an email to research@mepan.org to learn more about our research network.
Hugo J. Bellen, DVM, PhD
Baylor College of Medicine
Sidney M. Gospe III, MD PhD
Duke University
Alex Kastaniotis, PhD
University of Oulu
Michael Burkart, PhD
University of California San Diego
Susan Hayflick, MD, PhD
Oregon Health & Science University
Peter Kropp, PhD
Kenyon College
Debdeep Dutta, PhD
Baylor College of Medicine
Gali Heimer, MD, PhD
Sheba Medical Center
Ethan Perlstein, PhD
CEO, Perlara PBC
Join Us!
Nothing can be accomplished without collaboration. Please consider donating time, money or resources to help improve the quality of life for people with MEPAN and create more awareness for rare conditions that affect millions of people worldwide. Send us a message to see how you can help!