MEPAN Research Network
Nothing can be accomplished without collaboration, and our experience is that rare disease research is often done in silos. Please consider joining our effort to expand MEPAN research beyond the affected pathway into relevant rare disease areas that are biochemically or pathologically connected.
We believe there is potential to find treatments that can help patients with MEPAN as well as those with some types of Leigh's disease, and certain brain iron disorders, acidurias, and pyruvate dehydrogenase deficiencies. Consider donating time or resources to that can help us improve the quality of life for people with these conditions.
Send us a message and we will arrange a Zoom call with members of the MEPAN research network or others to discuss potential project ideas and ways to collaborate.
Daphne Atlas, PhD
Hebrew University
Laura Fuqua, MS, GCG
Blueprint Genetics
Alex Kastaniotis, PhD
University of Oulu
Bryce Mendelsohn, MD, PhD
Kaiser Permanente Oakland
Michael Burkart, PhD
University of California San Diego
Susan Hayflick, MD, PhD
Oregon Health & Science University
Peter Kropp, PhD
National Institute of Health
Ethan Perlstein, PhD
CEO, Perlara PBC
Ralph DeBerardinis, MD, PhD
UT Southwestern Medical Center
Gali Heimer, MD, PhD
Sheba Medical Center
Melis Demir Köse, MD PhD
İzmir Katip Çelebi University
Valeria Tiranti, MD, PhD
Carlo Besta Neurological Institute
Join Us!
Nothing can be accomplished without collaboration. Please consider donating time, money or resources to help improve the quality of life for people with MEPAN and create more awareness for rare conditions that affect millions of people worldwide. Send us a message to see how you can help!