MEPAN Research Network
We are connected with professionals in research and medicine who are essential for discovering and developing treatments for patients with a rare disease. Our network includes experts in molecular and cellular biology, basic and preclinical research, and clinical and medical genetics.
Our primary aim is discover treatments for MEPAN Syndrome. We also seek ways to broaden MEPAN research beyond the affected pathway into relevant rare disease areas that are biochemically or pathologically connected.
Click here if you would like to submit a proposal, or send an email to research@mepan.org to join our research network.

Hugo J. Bellen, DVM, PhD
Baylor College of Medicine

Sidney M. Gospe III, MD PhD
Duke University

Alex Kastaniotis, PhD
University of Oulu

Michael Burkart, PhD
University of California San Diego

Susan Hayflick, MD, PhD
Oregon Health & Science University

Peter Kropp, PhD
Kenyon College

Debdeep Dutta, PhD
Baylor College of Medicine

Gali Heimer, MD, PhD
Sheba Medical Center

Ethan Perlstein, PhD
CEO, Perlara PBC
Join Us!
Nothing can be accomplished without collaboration. Please consider donating time, money or resources to help improve the quality of life for people with MEPAN and create more awareness for rare conditions that affect millions of people worldwide. Send us a message to see how you can help!