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Carson and Chase Miller

How You Can Help

Research needed to discover treatments for a rare disease is complex and expensive. There are no proven treatments for MEPAN, but we are doing everything we can to change that. Current projects that need support and funding include:


  • An expanded drug repurposing project with Perlara.

  • Experiments at the University of Florida and the University of Oulu to develop and test an AAV gene therapy for MEPAN that may help vision or movement issues in patients.

Please consider making a donation to help advance these projects.

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