top of page

How You Can Help
Research for discovering treatments for a rare condition like MEPAN can cost millions of dollars. We have several projects that need your help:
-
Supporting a drug repurposing project underway at UCSF testing over 2,000 FDA-approved drugs to find a medicine that could help improve MEPAN symptoms.
-
Developing disease biomarkers that can help measure how treatments might help patients.
There is also other MEPAN research being done and several proposals from researchers in the U.S., Europe and Israel that need funding. Every one of them has the potential to help patients with MEPAN Syndrome and related disorders.
bottom of page