Danny MillerMar 28, 2020More Awareness for MEPAN in Genetic Testing LabsSolving a rare disease puzzle is hard. There are now nearly 8,000 rare diseases, and many of those have patient numbers in the single or...
Danny MillerJun 12, 2019Sharing Our Story With The UDN NetworkWe received Carson and Chase’s diagnosis of MEPAN Syndrome at Stanford a little over a year ago as a result of our acceptance into the...
Danny MillerApr 18, 2019Sharing Our Story With the FDAA few weeks ago I had the opportunity to participate at an event hosted by the United Mitochondrial Disease Foundation. It was a...
