Photo credit: Lorelei Voorsanger - http://photosbylorelei.com/
"Life is not easy for any of us. But what of that? We must have perseverance and above all confidence in ourselves. We must believe that we are gifted for something and that this thing must be attained."
- Marie Curie
Our sons Carson and Chase were diagnosed with MEPAN Syndrome in 2018 and now require help with every aspect of daily living. Traditional methods for helping people with rare genetic conditions like MEPAN are often ineffective due to the complex nature of these diseases and differences in people's own unique genetic characteristics.
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We established MEPAN Foundation in 2018 to fund and accelerate collaborative scientific research based on genetic and molecular insights --- to help identify and address the root causes of devastating conditions like MEPAN.
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Globally, there are over 10,000 rare genetic conditions like MEPAN, and they affect more than 30 million people in the United States. Help us make a difference.